One of my greatest fears ever since I got sick is my future prospects as a chronically ill /PWD person in this country. I’ve been wanting to talk about transcending chronic illnesses and working on something meaningful in life. But I didn’t know how. This is why it’s been taking me such a long time to write something here again.
Until I read about Claire Wineland, her clairity project and Claire space foundation. She’s been battling cystic fibrosis since childhood. Then, I discovered Jaquie Beckwith and her service dog, Harlow. Through her IG posts and vlogs, she’s been documenting how she lives daily with multiple illnesses. I wondered what makes them tick.
A eureka moment led me to believe that they are not only embracing their vulnerabilities but also keeping an open mind on gambling on life. As what one of my favorite researchers said, they have “character…the ability to dig down and find the strength when things are going against you.” They are working with their limits to go higher and to expand their boundaries. They connect with people; they are not doing this alone. I realized I’ve been taking risks half-baked because I was letting fear overwhelm me. When I created this blog, I had a vision of it primarily being a space where people can reclaim their own stories as I reclaim mine. However, I was letting fear hamper me on touching on some issues.
Where do we go from here? Now that I have a handle on my present reality, I will consciously and courageously throw my chips. No more mediocre commitment. I’ll share whatever I can about my journey and push to transcend awareness of multiple chronic illnesses into actions through 1) writing, vlogging, and photographing to stop the stigma of chronically ill people NOT having a “life”; 2) stop the stigma against mental illnesses because hey, we are not what the common stereotypes depict; and 3) discussing the intersectionality of the issues the chronically ill face.
Please look forward to my future content here and at my youtube channel, Chelly Caritativo. I need your hands to make this happen! If there is any way we can collaborate, shoot me an email or simply message me here.
My FIRST youtube video will be out very soon! I’ll post the details asap. EXCITING!!!!
P.S. The part two post of my Japan trip will be posted soon. I’m a woman of my word; sorry for the delay. Hospital admissions got in the way. 🙂