Random Thoughts and Rambles

  • Going into my second month in stan twitter, I am beginning to understand how easily people throw words as defense when they feel threatened. In every argument, they feel that they must win and reign superior over the other party to feel a sense of justice. However, as the argument presses on, wounds go deeper and more difficult to heal. The hunger of retribution sharpens. It is a never ending cycle of giving and receiving pain. And all of this stems on pride. The inability to be accountable. The decision not to acknowledge faults. The repressed anger bubbling under retorts.
  • Forgiveness is such a wonder. An art form, really. There is a ritual – a routine – for every person to attain it. This personal ritual must be respected. An offender has no right to dictate when the pain ends. Time and space are important steps.
  • To walk on a flower path is to walk into every season. It is the acceptance that spring days evolve into summer-filled afternoons and the wind will become colder and colder until it is hard to progress. This is the rule of nature and time. Maturity comes and makes us more refined. The denial that things will stay in bloom forever is childish and a daydream one must wake up from.
  • Death is the only time we will stop balancing ourselves between the good and evil extremes of each value we keep.
  • I miss philosophy classes.
  • I think I am out of my recent depression episode.
  • Love, after the infatuation runs out, is a difficult or easy choice to make. It depends on how one wakes up in the morning.
  • With my month-long reflection, I realized that I still do desire to establish myself in another country. It’ll be hard but the challenges excite me. This will take a long, long time.
  • The love of my life is the group of kids I taught back in my first university.
  • After all this time, always in all ways, for the kids.
  • My new back brace makes me feel like a robot.
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Languid

Perhaps the most recurrent theme of this depression cycle is ‘searching’. I craved to be alone most of the time to listen to music, to write down thoughts, and to embrace all the privacy I can get. I knew that my way out isn’t through the help of people this time.

Somewhere along this year, I lost my sense of self. I lost a part of my identity in my fight to be alive.  I became someone’s advocate, another’s girlfriend, a daughter, a friend, a patient etc. But all these did not mesh together well. I did not know the sum of my parts.  I ended up being more broken.

As such, I’m using this restlessness to provoke me to do self-care and to feel something, anything, as me for me. To find out once again what I like, what I love. To find why I’m trying so hard to have more time here. To search who I want to become.

Youth (is yours? Jk)

Hola, interwebs! 🙂

Recently, I’ve had the random realization that I don’t want to marry nor to have my own family in my twenties. It’s not just a sudden thought or decision that has no foundation underneath it. It’s because I think I haven’t fully enjoyed my youth. With my past childhood trauma and my health going haywire right after my university graduation, you can bet the I spent most of my puberty and teens either crying my butt off or trying not to get hospitalized (yet again).

I’ve been composing, writing, crafting, and fangirling (BANGTAN SONYEONDAN!) my days while slowly recovering since last week. I’m surrounded with the type of quiet I love and even in the midst of my depression cycle, I can say I’m having “fun”. And I want more days like these (minus the depression).

This is not to say that I am awfully discontented with how my life is going. I’m not. I’m making peace with what I have and trying to make the best out of it.  It’s just that there are adventures I’ve yet to take and I’d rather go alone.

On Weight

Hiya, interwebs. It’s been a month since I blogged BUT I’m here now. Today, I’ll be talking about weight.

Ever since I was born, my built is not skewed towards the skinny type. I was just okay, appearance-wise, and I never became obese.  Still, I got called fatty all my life. It used to upset me so much that I never upload whole body pictures of me unless I thought I looked thin in them. I was so afraid of the judgments and comments.

When I became sicker, this insecurity came rearing back from the dead. My weight fluctuated a lot because of my medicines (and now because of my gastrointestinal illnesses. My illness count is now at 9.)  In fact, an acquaintance told me that “I look “healthy” aka chubby for someone who is seriously sick.” It was a hard slap of reality on the face…

…because F*CK beauty standards. Weight does not judge someone’s beauty. I’ve had enough. No more. 

Looking back, I thought there was something wrong with me. I didn’t look like the models and the artists I saw on TV, IG, and other media. I wasn’t size 2 or 4. At my skinniest, I was a size 6 or 8 due to my health condition. I remember getting compliments about it and thinking that the society must be shitting me. I was in pain and yet I get praised for it?!

 

So, to the people reading this blog, please remember:
Your worth as a person can’t be weighed on a numbered weighing scale. Do not based your values on society’s norms because society sets up some rules that are wrong anyway. If there is something you should care about regarding weight, it should be your BMI.

You are more than numbers. 
We aspire for healthy. 
Your worth is inherent.
You deserve to be loved – your body, your heart, your mind – all of you. 
You are beautiful. 

Some Travel Advice (Japan Trip Part Two)

Hello, fellow earthlings! As promised, here is the part two of my Japan travel blog post. Let’s start with this vlog I released days ago:

(click this and come back here, plox)

And now for the tips:

  • Consult your doctors if you are fit to travel to your destination of choice. You need to check your stats and to know how to best manage your treatments while you are away.
  • Travel with someone who knows your medical history thoroughly. It’s better if he/she is your primary care.
  • Research your destination! See if they have the facilities and spaces that are suited with your needs.
  • Stock on all of your medical supplies! Make sure you have a ~little~ more than what you need.
  • As much as possible, travel as light as you can. (I know this is hard.)
  • Write your things-to-do on post-its, etc. We don’t want brain fog to strike us hard, right?
  • Have plans of action to medical scenarios that might happen. It’s better to be prepared at all times.
  • REST. REST. REST a lot days before your travel. You need your energy when you sight-see and experience the places!
  • HAVE FUN. Traveling is a privilege for us warriors. Once our health permits us, we gotta take advantage (with caution). 😉

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Brand New Step

One of my greatest fears ever since I got sick is my future prospects as a chronically ill /PWD person in this country. I’ve been wanting to talk about transcending chronic illnesses and working on something meaningful in life. But I didn’t know how. This is why it’s been taking me such a long time to write something here again.

Until I read about Claire Wineland, her clairity project and Claire space foundation. She’s been battling cystic fibrosis since childhood. Then, I discovered Jaquie Beckwith and her service dog, Harlow. Through her IG posts and vlogs, she’s been documenting how she lives daily with multiple illnesses. I wondered what makes them tick.

A eureka moment led me to believe that they are not only embracing their vulnerabilities but also keeping an open mind on gambling on life. As what one of my favorite researchers said, they have “character…the ability to dig down and find the strength when things are going against you.” They are working with their limits to go higher and to expand their boundaries. They connect with people; they are not doing this alone. I realized I’ve been taking risks half-baked because I was letting fear overwhelm me. When I created this blog, I had a vision of it primarily being a space where people can reclaim their own stories as I reclaim mine. However, I was letting fear hamper me on touching on some issues.

Where do we go from here? Now that I have a handle on my present reality, I will consciously and courageously throw my chips. No more mediocre commitment. I’ll share whatever I can about my journey and push to transcend awareness of multiple chronic illnesses into actions through 1)  writing, vlogging, and photographing to stop the stigma of chronically ill people NOT having a “life”; 2) stop the stigma against mental illnesses because hey, we are not what the common stereotypes depict; and 3) discussing the intersectionality of the issues the chronically ill face.

Please look forward to my future content here and at my youtube channel, Chelly Caritativo. I need your hands to make this happen! If there is any way we can collaborate, shoot me an email or simply message me here.

My FIRST youtube video will be out very soon! I’ll post the details asap. EXCITING!!!!

 

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P.S. The part two post of my Japan trip will be posted soon. I’m a woman of my word; sorry for the delay. Hospital admissions got in the way. 🙂

Japan Trip (Part 1)

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This trip should have happened back in October 2015. Unfortunately, I got hospitalized. The plan was pushed back and back because of my sister’s busy clerkship schedule (She’s a medical student!) and my unstable health.

Fortunately, this year, my mom started planning this trip again because I was gaining more ground on managing my symptoms and my sister was informed she’ll have a two-week vacation.

Fast track to the the first week of May. Everything was coming together – we had our visas granted, booked our tickets, and chose major places to visit. However, my health started to decline. Because my current mix of medicines then, I began to experience my second major fibromyalgia flare. My neck, back, hips, knees, and calves were burning almost everyday. I cannot walk beyond 15 mins nor I can stand for that long. My TMJ flared too. The stress of my heavy academic requirements amplified it.

As such, my parents and I consulted my psychiatrist and rheumatologist. They told us that there must be an improvement every week before they grant me a travel clearance. Thus they gave a new mix of medicines, upping 8 pills to 11 on a moderately bad day.

Thankfully, the pain lessened. And so, they gave me clearance provided that I will take a wheelchair in the airports, the amusement parks and other tourist spots. After all, I was still in flare albeit at the *hopefully* tail end.

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The first three days had me feeling okay for most of the time. The streets, transportation, buildings, and parks of Tokyo were a thousand times more PWD-friendly than my own home city in the Philippines.  This definitely lessened my stress and worries. It was easy asking for wheelchair assistance because the people were very accommodating. Shoutout to Disneyland for having priority seats during shows and views during parades! Visit my photography portfolio here for more photos 🙂

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Stay tuned for part 2 wherein I will share some travel tips for chronic illnesses sufferers!